...4...5 When I was taking education courses, a wise professor taught us to count to five slowly before calling on a student to answer a question. She explained that students process differently and it takes some longer than others to come up with an answer.
This lesson has come in very handy in grandparenting (yes, I did make up that word) a child on the autism spectrum. It seems that the brain of someone with autism doesn't work in the same way as the average person's. (If you like, I can refer you to some sites for further explanation.)
In the part of the northeast that we live in, we tend to be in a rush. This makes us want answers to our questions as soon as we ask them.
"What did you have for lunch in school today. Huh? What?"
This might be asked with little pause between the three questions.
I noticed that we were doing this with Isabella. After remembering what my dear professor said, I started pausing and watching my girl. I was actually able to "see" her gears turning while she processed the question.
When Bells was in pre-k, Jordan longed for her to be able to answer that simple question about lunch. Now, she can! Sometimes the answer comes easily and other times I need to prompt her. Her progress, though, is wonderful!
Whether on the autism spectrum or not, it is kind to wait on answers from those around us.
So, too, is it wise to wait before answering questions. I tend to suffer from "foot in mouth disease" because of some of my "unfiltered" comments.
The weekend is here and we are anticipating snow. I think I will sleep through it. What are you up to? g
This post is part of a blog hop at Company Girl via Home Sanctuary Why not visit?
A little bit of this and a little bit of that with a whole lot of love...
Showing posts with label Grandparenting. Show all posts
Showing posts with label Grandparenting. Show all posts
Friday, January 20, 2012
Friday, May 27, 2011
Oy, How did that Happen?
My day was planned out perfectly: bring Isabella to school, stop at the library, weight watchers meeting, trip to an outlet area for new "unmentionables" and maybe a new dress for our niece's wedding, maybe a trip to Trader Joe's and then, blessedly, a nap!
But nooooooo! As I pulled into the drop off area at school, I noticed I was the only one there. The district didn't use all its snow days so we have a four day Memorial Day weekend. No one told me! Isabella was confused but dealt with it. "Is school finished?" "For this week it is, honey."
After a week of congestion and coughing (allergies?), Bells could have slept in this morning and this upset me. I hate to wake her up when she is in a deep sleep. That might have bothered me more than having my plans upset.
We went to the library, one of Bells favorite places, and then to weigh in but not stay for the meeting (another pound and a bit - just over 21 pounds!) and then we went to see great grandma. This was a good thing as she adores her little pigeon (pah-jink-ah in Slavish) and she is pretty fond of me, too. We all packed into my car and went to the outlets together. Isabella made out the best with sandals, a swim suit and a dress. I got two tops and a skirt - only $10 each! -and I got a lovely top for my daughter, too. Nothing for the wedding and no undergarments.
We had a bite to eat in the food court and went back to great grandma's where we waited for himself. He ate the gyro we brought back for him and then we drove up to where The Girl works so Bells could go swimming.
Are you tired yet? I am! Himself went home and I went to get some stuffed cupcakes and then home to cook. Ugh.
Since dinner, I have, basically, been sitting in my recliner fooling around on the netbook and "watching" mostly mindless tv.
Now, my perfectly planned day is another example of God's sense of humor. "Man plans and God laughs?" Had everything gone according to plan I still would have taken Isabella by her mom but then great grandma wouldn't have had her usual Friday visit. My mother-in-law adores Isabella. My girl brings great joy to her and this was a hard week because it would have been my father-in-law's birthday. I am so happy we were able to bring joy to Mom
As for tomorrow, I am afraid to make plans! Truthfully, all I want is to sleep as long as possible and stay in bed until I am good and ready to get up! If someone gets in the way of that they had better look out. If Mama ain't happy ain't nobody happy!
To my American friends, let's not forget the reason for Memorial Day even whilst we enjoy our bbq's and whatnot.
blessings, g
But nooooooo! As I pulled into the drop off area at school, I noticed I was the only one there. The district didn't use all its snow days so we have a four day Memorial Day weekend. No one told me! Isabella was confused but dealt with it. "Is school finished?" "For this week it is, honey."
After a week of congestion and coughing (allergies?), Bells could have slept in this morning and this upset me. I hate to wake her up when she is in a deep sleep. That might have bothered me more than having my plans upset.
We went to the library, one of Bells favorite places, and then to weigh in but not stay for the meeting (another pound and a bit - just over 21 pounds!) and then we went to see great grandma. This was a good thing as she adores her little pigeon (pah-jink-ah in Slavish) and she is pretty fond of me, too. We all packed into my car and went to the outlets together. Isabella made out the best with sandals, a swim suit and a dress. I got two tops and a skirt - only $10 each! -and I got a lovely top for my daughter, too. Nothing for the wedding and no undergarments.
We had a bite to eat in the food court and went back to great grandma's where we waited for himself. He ate the gyro we brought back for him and then we drove up to where The Girl works so Bells could go swimming.
Are you tired yet? I am! Himself went home and I went to get some stuffed cupcakes and then home to cook. Ugh.
Since dinner, I have, basically, been sitting in my recliner fooling around on the netbook and "watching" mostly mindless tv.
Now, my perfectly planned day is another example of God's sense of humor. "Man plans and God laughs?" Had everything gone according to plan I still would have taken Isabella by her mom but then great grandma wouldn't have had her usual Friday visit. My mother-in-law adores Isabella. My girl brings great joy to her and this was a hard week because it would have been my father-in-law's birthday. I am so happy we were able to bring joy to Mom
As for tomorrow, I am afraid to make plans! Truthfully, all I want is to sleep as long as possible and stay in bed until I am good and ready to get up! If someone gets in the way of that they had better look out. If Mama ain't happy ain't nobody happy!
To my American friends, let's not forget the reason for Memorial Day even whilst we enjoy our bbq's and whatnot.
blessings, g
Sunday, May 8, 2011
Mother's Day and Such
It is just after 10:30 PM this Mother's Day of 2011. It was a good day.
Himself and I grabbed a bite last night - although we had to leave because the place we chose was so crowded I got overwhelmed and we had to take the meal to go. It was better at home anyway!
After church, I started to prepare the meal I am going to serve my parents when they visit tomorrow. We so rarely get to see each other and I want to have something special for them. Sunday afternoons are usually for napping but we had to go to Himself's mom's house. It was so good to see everyone there.
Isabella, at age five, is the oldest of the great-grandchildren. Her cousin Giuliana is just thirteen months old and cousin Tyler is just four weeks old. My poor Bells was so upset at not being the center of attention. When I picked up Tyler, the look on my girl's face was like I had put a knife through her heart.
We sometimes expect to be able to reason with our girl as we would an NT (neuro-typical) child but often we can't. What is going on in her mind; her intelligent, wonderful, complex mind? How does she process what she sees and hears? Is she acting like a brat or like a hurt child unable to understand that our love for other children will never take away from our love for her?
There is a very loaded question in the autism community: if you could take away your child's autism, would you? Some say a resounding, "No!" as if you are insulting their child. Those who are on the spectrum and can answer for themselves often say no.
For the parents and families of people with autism who can not communicate or are afflicted with anxiety and frustration, there is often a resounding, "Yes!"
Would I take away Isabella's autism if I could? Get back to me in a few years when she is no longer an adorable five year old; when other kids can hurt her more than they can now; when she realizes she is "different." I'll let you know then.
For now, I will love her and hug her and joyfully swim in the wonder of her hugs and kisses and her requests to sit with me, sitting so closely I can't tell where she begins and I end. I will hope that she never stops calling me Booboo replacing this special name with the generic names grandmothers go by because Booboo makes me feel special. I will walk to raise money to help others on the spectrum. I will advocate and go to meetings at school and support my daughter as best I can on this journey.
I am not a saint. I am a tired, worn out mom and grandmother not always trying my best but doing what I can when I can. There are times when I just sit and play on my netbook or watch tv and knit. I give myself permission to be lazy whenever possible. Thankfully, my best is good enough for Bells. And that is what matters.
Himself and I grabbed a bite last night - although we had to leave because the place we chose was so crowded I got overwhelmed and we had to take the meal to go. It was better at home anyway!
After church, I started to prepare the meal I am going to serve my parents when they visit tomorrow. We so rarely get to see each other and I want to have something special for them. Sunday afternoons are usually for napping but we had to go to Himself's mom's house. It was so good to see everyone there.
Isabella, at age five, is the oldest of the great-grandchildren. Her cousin Giuliana is just thirteen months old and cousin Tyler is just four weeks old. My poor Bells was so upset at not being the center of attention. When I picked up Tyler, the look on my girl's face was like I had put a knife through her heart.
We sometimes expect to be able to reason with our girl as we would an NT (neuro-typical) child but often we can't. What is going on in her mind; her intelligent, wonderful, complex mind? How does she process what she sees and hears? Is she acting like a brat or like a hurt child unable to understand that our love for other children will never take away from our love for her?
There is a very loaded question in the autism community: if you could take away your child's autism, would you? Some say a resounding, "No!" as if you are insulting their child. Those who are on the spectrum and can answer for themselves often say no.
For the parents and families of people with autism who can not communicate or are afflicted with anxiety and frustration, there is often a resounding, "Yes!"
Would I take away Isabella's autism if I could? Get back to me in a few years when she is no longer an adorable five year old; when other kids can hurt her more than they can now; when she realizes she is "different." I'll let you know then.
For now, I will love her and hug her and joyfully swim in the wonder of her hugs and kisses and her requests to sit with me, sitting so closely I can't tell where she begins and I end. I will hope that she never stops calling me Booboo replacing this special name with the generic names grandmothers go by because Booboo makes me feel special. I will walk to raise money to help others on the spectrum. I will advocate and go to meetings at school and support my daughter as best I can on this journey.
I am not a saint. I am a tired, worn out mom and grandmother not always trying my best but doing what I can when I can. There are times when I just sit and play on my netbook or watch tv and knit. I give myself permission to be lazy whenever possible. Thankfully, my best is good enough for Bells. And that is what matters.
Thursday, April 28, 2011
Dribs and Drabs
It's hard to come up with a title for a post when I have no clue what I am going to write about so I will leave that until I finish.
After meeting some wonderfully interesting new people through the Five Minutes for Moms blog party, I find that not writing seems lame. If all the other busy people I visit can find time to write why can't I?
It is not really about time. It is the fear of boring people to tears. Hmmm...boring to tears...what causes that...yawning? I digress...I like to digress...
Life in my little corner of the great Atlantic northeast is rarely boring. Three to four days a week I take my grandbaby, Isabella (Bells or Boo to me most of the time) to school. Morning is not my favorite time of day so this is an effort. After that, if my fms (fibromyalgia) isn't kicking my bum causing me to have to go back to bed for a couple of hours, I try to get some work done. I don't often succeed. You see, I have an aversion to housework. I say it is because I am a perfectionist. If I can't do it perfectly, why do it at all?!
I am the team captain for our Autism Speaks walk next month. By this time last year, I had a team of about fifteen and had raised hundreds of dollars. My team is only around six people right now and I haven't even raised $200. This is very discouraging.
~heavy sigh~
Quite a bit of my time has been spent helping out mother-in-love. Yes, you read that right. I love my mother-in-law. She is 85 and in poor health and I am the only one in the area who doesn't have a full-time job. I don't mind. It is a labor of love.
Too much time is spent on my netbook. 'nuff said about that.
For the last few months, I have been enjoying a study of the Old Testament that a friend teaches and have started a study of the gospel of John with another friend. It has been quite some time since I have been in a Bible study group and this is a great development.
My eyes are tearing up. Bored to tears....I won't put you through any more mediocrity. Just know that I want to stay in your lives and will keep up as best I can.
blessings, g
After meeting some wonderfully interesting new people through the Five Minutes for Moms blog party, I find that not writing seems lame. If all the other busy people I visit can find time to write why can't I?
It is not really about time. It is the fear of boring people to tears. Hmmm...boring to tears...what causes that...yawning? I digress...I like to digress...
Life in my little corner of the great Atlantic northeast is rarely boring. Three to four days a week I take my grandbaby, Isabella (Bells or Boo to me most of the time) to school. Morning is not my favorite time of day so this is an effort. After that, if my fms (fibromyalgia) isn't kicking my bum causing me to have to go back to bed for a couple of hours, I try to get some work done. I don't often succeed. You see, I have an aversion to housework. I say it is because I am a perfectionist. If I can't do it perfectly, why do it at all?!
I am the team captain for our Autism Speaks walk next month. By this time last year, I had a team of about fifteen and had raised hundreds of dollars. My team is only around six people right now and I haven't even raised $200. This is very discouraging.
~heavy sigh~
Quite a bit of my time has been spent helping out mother-in-love. Yes, you read that right. I love my mother-in-law. She is 85 and in poor health and I am the only one in the area who doesn't have a full-time job. I don't mind. It is a labor of love.
Too much time is spent on my netbook. 'nuff said about that.
For the last few months, I have been enjoying a study of the Old Testament that a friend teaches and have started a study of the gospel of John with another friend. It has been quite some time since I have been in a Bible study group and this is a great development.
My eyes are tearing up. Bored to tears....I won't put you through any more mediocrity. Just know that I want to stay in your lives and will keep up as best I can.
blessings, g
Saturday, February 26, 2011
Oh, no, not again...
Something I might not have shared with you in the past is that, in the past, I have suffered from crippling panic attacks. It has been a while since I feared them but, this past week, that has changed.
Out of the blue, this past Tuesday I had a full blown attack. It popped up, seemingly, out of nowhere. I was so thankful that Isabella wasn't with me as I have no idea how she might have reacted to her Booboo freaking out.
What does one of these attacks look like for me? The pressure in my chest makes me fear a heart attack. Sometimes some pain in my left arm almost convinces me. I tend to feel very hot. I believe I said out loud, "Oh, dear God, help me!" I left my seat in the living room and walked to the kitchen where I held on to the counter for dear life and remembered my training from the Claire Weekes book Hope and Help for Your Nerves .
Self talk:
You are having a panic attack
You have survived them before.
Accept that you are having this panic attack
Your heart is a very strong muscle and it will not explode.
Breathe and float through it.
Sounds too simple, right? Well, it took years for me to be able to work through this. Still, it is a horrible experience.
Why am I talking about this? Why do I talk about most things? To get the word out that we are not alone with our ills and heartaches. I could write about only rosey, wonderful things happening in my life and you could say, "Oh, what a lovely life she has!" Well, I do have a pretty good life but it is not all flowers and butterflys! It has ugliness in it. However, I always have hope.
Hope. How glorious is hope?! I know that this earthly shell is temporary and that I have a heavenly home being prepared for me. When I get there, I will not have panic attacks or fibromyalgia or weight issues. My Isabella will join me there and her autism will be left behind. My grammy, whose Parkinson's stole her expressive face, will greet me with her smile. Oh, what a wonderful hope!
Life has been tough lately. My mother-in-law is in poor health and I am the only one not working full-time so I need to be available to her for doctors' appointments. The Girl needs Himself and me to care for Isabella when she is not in school. Two things that have probably brought back the panic attacks.
Things will get better.
Blessings, g
Out of the blue, this past Tuesday I had a full blown attack. It popped up, seemingly, out of nowhere. I was so thankful that Isabella wasn't with me as I have no idea how she might have reacted to her Booboo freaking out.
What does one of these attacks look like for me? The pressure in my chest makes me fear a heart attack. Sometimes some pain in my left arm almost convinces me. I tend to feel very hot. I believe I said out loud, "Oh, dear God, help me!" I left my seat in the living room and walked to the kitchen where I held on to the counter for dear life and remembered my training from the Claire Weekes book Hope and Help for Your Nerves .
Self talk:
You are having a panic attack
You have survived them before.
Accept that you are having this panic attack
Your heart is a very strong muscle and it will not explode.
Breathe and float through it.
Sounds too simple, right? Well, it took years for me to be able to work through this. Still, it is a horrible experience.
Why am I talking about this? Why do I talk about most things? To get the word out that we are not alone with our ills and heartaches. I could write about only rosey, wonderful things happening in my life and you could say, "Oh, what a lovely life she has!" Well, I do have a pretty good life but it is not all flowers and butterflys! It has ugliness in it. However, I always have hope.
Hope. How glorious is hope?! I know that this earthly shell is temporary and that I have a heavenly home being prepared for me. When I get there, I will not have panic attacks or fibromyalgia or weight issues. My Isabella will join me there and her autism will be left behind. My grammy, whose Parkinson's stole her expressive face, will greet me with her smile. Oh, what a wonderful hope!
Life has been tough lately. My mother-in-law is in poor health and I am the only one not working full-time so I need to be available to her for doctors' appointments. The Girl needs Himself and me to care for Isabella when she is not in school. Two things that have probably brought back the panic attacks.
Things will get better.
Blessings, g
Labels:
Anxiety,
Faith,
Family,
Grandparenting,
Health,
Panic Disorder
Friday, February 4, 2011
Hurting Hearts
My daughter called me this evening to ask why "A" doesn't sit with Bells on the bus any more. Truth be told, I didn't know this. Isabella was obsessed with A and we have had a play date and A came to Bells' birthday party.
When The Girl asked Bells why, all she could say was that A is now sitting with L who is mean. "Is L mean to you, Baby?" "Yes. She makes this face(makes an ugly face) at me.
Although our Bells has come so very far this past year, it is hard to not be able to get the whole story from her. I know I can ask the bus driver and monitor on Monday but this leaves the entire weekend for my daughter to feel badly and fear that her baby is hurting.
Our girl has been going through some changes lately. She is still loving and sweet but she has learned how to throw a wicked tantrum and can shed crocodile tears with the best of them.
On the positive side, she is progressing socially and educationally. We are seeing an improvement in fine motor skills. Her school saw fit to get her physical therapy because, well, she needs it! She falls down a lot and bumps into things. (Yes, we did get her eyes examined.)
Last year, my dear daughter would say, "If only she could tell me what she had for lunch today." This year, our girl can tell you what she had for lunch and who did what during lunch!
Maybe next year we will be hearing what is going on on the school bus in detail from our dear one.
When The Girl asked Bells why, all she could say was that A is now sitting with L who is mean. "Is L mean to you, Baby?" "Yes. She makes this face(makes an ugly face) at me.
Although our Bells has come so very far this past year, it is hard to not be able to get the whole story from her. I know I can ask the bus driver and monitor on Monday but this leaves the entire weekend for my daughter to feel badly and fear that her baby is hurting.
Our girl has been going through some changes lately. She is still loving and sweet but she has learned how to throw a wicked tantrum and can shed crocodile tears with the best of them.
On the positive side, she is progressing socially and educationally. We are seeing an improvement in fine motor skills. Her school saw fit to get her physical therapy because, well, she needs it! She falls down a lot and bumps into things. (Yes, we did get her eyes examined.)
Last year, my dear daughter would say, "If only she could tell me what she had for lunch today." This year, our girl can tell you what she had for lunch and who did what during lunch!
Maybe next year we will be hearing what is going on on the school bus in detail from our dear one.
Thursday, November 18, 2010
"We're not Booboo and Isabella any more;...
...we the Chef Girls in the whole world!" This was Isabella's exclamation to me when we were preparing waffles yesterday. Doesn't that just make you want to plotz?! Too cute as far as I'm concerned.
Her comment and her ability to express herself made me happy and sad. You see, there are so many people on the autism spectrum who are unable to express themselves verbally. For their loved ones, it might be a guessing game as to what their needs are. I am happy that Bells can express herself and sad when others can't.
Bells doesn't show many outward signs of her condition. If you don't spend much time with her you would just see a "normal," five year old girl. It's when you are in her company for a while that you see the stimming by waving around a piece of paper she has torn, leaving behind shredded paper in her wake or wonder at her astute observations not realizing she is repeating scripts from a tv show (delayed echolalia), one way she learns to express herself. She also won't poop on the toilet yet; a common problem in our community.
We are able to take Isabella out for a meal with little possibility of a meltdown. Many, many families on the spectrum aren't so blessed. Their worlds are very small, unable to venture out to do the simplest of things with their child(ren) for fear of the world being too much for these special loved ones. Their neurotypical children are pulled in as well and their parents have the guilt of that on their already burdened shoulders.
Yes, we have it good. My heart goes out to the families who are fighting the fight and are leading the way. Two blog sites you might be interested in by moms who are making a difference are
A Diary of a Mom and Rhema's Hope. Want to know how the mind of a person with Asperger's Syndrome works? Visit Aaron at Life on the Other Side of the Wall.
I love this community. gail
Her comment and her ability to express herself made me happy and sad. You see, there are so many people on the autism spectrum who are unable to express themselves verbally. For their loved ones, it might be a guessing game as to what their needs are. I am happy that Bells can express herself and sad when others can't.
Bells doesn't show many outward signs of her condition. If you don't spend much time with her you would just see a "normal," five year old girl. It's when you are in her company for a while that you see the stimming by waving around a piece of paper she has torn, leaving behind shredded paper in her wake or wonder at her astute observations not realizing she is repeating scripts from a tv show (delayed echolalia), one way she learns to express herself. She also won't poop on the toilet yet; a common problem in our community.
We are able to take Isabella out for a meal with little possibility of a meltdown. Many, many families on the spectrum aren't so blessed. Their worlds are very small, unable to venture out to do the simplest of things with their child(ren) for fear of the world being too much for these special loved ones. Their neurotypical children are pulled in as well and their parents have the guilt of that on their already burdened shoulders.
Yes, we have it good. My heart goes out to the families who are fighting the fight and are leading the way. Two blog sites you might be interested in by moms who are making a difference are
A Diary of a Mom and Rhema's Hope. Want to know how the mind of a person with Asperger's Syndrome works? Visit Aaron at Life on the Other Side of the Wall.
I love this community. gail
Thursday, May 13, 2010
New Routine?
Being someone who doesn't like change all that much, the fact that I have been thinking that I need a change in routine is a bit odd. It's not that my life isn't fulfilling because it is. It would be nice, though, to have some choices.
One choice I would make would be to be fibromyalgia free for a while. Usually, I don't even notice the pain I live with daily. It is just part of my life and I accept it. However, when I have a night like last night, where the pain woke me so often, well, it would be nice to sleep uninterrupted. Also, I would like to be able to make plans without having alternatives planned just in case the fms flares up.
Another choice would be to have the concentration to go back to school or hold down a job. FMS works havoc on one's concentration. Just the thought of going back to work causes anxiety deep within me.
I know that every school day I need to be available to pick up Isabella at 2:30. Do I have a choice in this? I could refuse but who would do it? Today, it would have been lovely to take a nap to make up for last night's lost sleep. Yet, here I sit, with The Little Mermaid on for the fifth time in three days.
A friend recently wondered out loud what her life would have been like had she taken the path she originally planned. We won't ever find out, will we? This is not the life I planned either. However, we are where we are and can either dwell on the past in times of doubt or press on and make the best of where our choices have led us.
Sometimes overwhelmed but always blessed. I suppose that sums up my life right now. That's not too bad, right?
One choice I would make would be to be fibromyalgia free for a while. Usually, I don't even notice the pain I live with daily. It is just part of my life and I accept it. However, when I have a night like last night, where the pain woke me so often, well, it would be nice to sleep uninterrupted. Also, I would like to be able to make plans without having alternatives planned just in case the fms flares up.
Another choice would be to have the concentration to go back to school or hold down a job. FMS works havoc on one's concentration. Just the thought of going back to work causes anxiety deep within me.
I know that every school day I need to be available to pick up Isabella at 2:30. Do I have a choice in this? I could refuse but who would do it? Today, it would have been lovely to take a nap to make up for last night's lost sleep. Yet, here I sit, with The Little Mermaid on for the fifth time in three days.
A friend recently wondered out loud what her life would have been like had she taken the path she originally planned. We won't ever find out, will we? This is not the life I planned either. However, we are where we are and can either dwell on the past in times of doubt or press on and make the best of where our choices have led us.
Sometimes overwhelmed but always blessed. I suppose that sums up my life right now. That's not too bad, right?
Friday, November 20, 2009
Futile to Fight Falderal
The girls have finally moved back home. It was a quick, easy move although the getting organized will probably start tomorrow. Correction: better start tomorrow.
What is futile is to fight wanting a quiet house for any length of time. As a, matter of fact, we had to pick up Bells from school yesterday with a cough and low fever. She can not return until we have a doctor's note. Even a slight fever gives the schools such fear now. It is a shame but I suppose it is necessary.
What is also futile is to depend on others to figure out the right answers for a child like Isabella. After waiting nine months for an appointment, I accompanied The Girl and Bells to see a developmental pediatrician. Although we know she has autism, we had to get a formal diagnosis. The nurse practitioner took a detailed history and then the doctor came
in. She was read the history and didn't add much of anything. When asked about testing for deficiencies or about diet she said she doesn't do any of that because it isn't "scientifically proven." See you in six months.
What is futile is to fight wanting a quiet house for any length of time. As a, matter of fact, we had to pick up Bells from school yesterday with a cough and low fever. She can not return until we have a doctor's note. Even a slight fever gives the schools such fear now. It is a shame but I suppose it is necessary.
What is also futile is to depend on others to figure out the right answers for a child like Isabella. After waiting nine months for an appointment, I accompanied The Girl and Bells to see a developmental pediatrician. Although we know she has autism, we had to get a formal diagnosis. The nurse practitioner took a detailed history and then the doctor came
Hmmm...
Not one suggestion; not one how do you do. All we got was a diagnosis. Now I understand why the moms in Bells' school told us to use another doctor; live and learn. However, the nurse practitioner and doctor both agreed that Bells has a very good chance of leading a "normal" life some day in the future.
We have expected progress not further problems. However, our girl has started to hit herself on occasion. It has brought The Girl to tears. It seems to be like a reflex rather than a behavior she thinks about. Something for us to research.
On a lighter note, we celebrated Isabella's 4th birthday last weekend. Can you believe she is four years old? She loved being sung to at the several celebrations she had. Balloons? She brings them everywhere with her! The Girl has asked me to not get any more. Himself and I got her a set of instruments - percussion instruments - drum, maracas, castinets, bells! Typical grandparent present but not when the grandchild lives with you. That kind of noise doesn't bother me. High pitched noises do like whistles.
Are there any noises that bother you? High-pitched whistles, nails on a chalkboard and utensils scraping a plate.
Have there been any battles you have had to fight for your children? Many times. Getting my children classified with learning disabilities took my figuring it out before the system did. I will go into detail if you wish.
Do you like chai? Eww. I figured out that it has cloves in it and I have a story about cloves I might share some time that explains why I hate it.
Plans for Thanksgiving? I know my Canadian friends have already celebrated and my international friends might not celebrate. We are actually staying home this year. So many years going to the in-laws and we are tired of seeing Himself's mom exhaust herself. We will go there for dessert.
Is this going to be a good holiday season? If it KILLS me I will enjoy myself! Those of you who have been with me for a while know I don't like this time of year. I am going to try to be a model of Christmas cheer!
Be well, my friends. I pray that all is well. g
Labels:
Autism,
Family,
Friday Falderal,
Grandparenting,
Parenting
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